Wednesday, August 19, 2015

You will lead us through the storms

It's been a rough week in Brielle's world. Her seizures have become uncontrolled for the past week, despite medication, and we now have a myriad of tests and doctor visits lined up once again, just like this time last year. Another EEG, a new pediatric neurologist... and we've scheduled a consult with a genetic counselor in Fort Worth next month as well, to get a second opinion before running labs for the genetic tests. So far, every single test, lab, and appointment has left everyone clueless because she is the healthiest mystery ever. All tests come back negative, all labs come back clear. On paper, she is perfectly healthy. But obviously something is still amiss.

But God is still good. And as I rushed out to the pharmacy to pick up a second prescription for our little girl today, this song comes on the radio. Tears burn at the corner of my eyes and I can't help but sing-pray the song out loud. It is my heart cry in this season. It is all we can do. It is especially what we should do.



"My Lighthouse" 
by Rend Collective

In my wrestling and in my doubts
In my failures You won't walk out
Your great love will lead me through
You are the peace in my troubled sea
You are the peace in my troubled sea
In the silence, You won't let go
In my questions, Your truth will hold
Your great love will lead me through
You are the peace in my troubled sea
You are the peace in my troubled sea
My Lighthouse, my lighthouse
Shining in the darkness, I will follow You
My Lighthouse, my Lighthouse
I will trust the promise, 
You will carry me safe to shore
Safe to shore
I won't fear what tomorrow brings
With each morning I'll rise and sing
My God's love will lead me through
You are the peace in my troubled sea
You are the peace in my troubled sea
Fire before us, You're the brightest
You will lead us through the storms



He will carry us safe to shore. He is our peace when the storms rage. Instead of asking "why send the storm?" or "Are you here when the skies grow black and the fear begins to rise in my heart?"
But I know He will carry our daughter through to safety, and He brings peace in the midst of stormy hearts and unanswered questions. 


In other news, this little one is CRAWLING now and pulling on furniture to high-knees! We are hopeful that the next step is pulling to stand. We just had an orthopedic appointment today and she will be getting some ankle braces and some other equipment to strengthen her muscles and bones, and encourage her next goals: STAND AND WALK!

video


Thanks for STANDING with us in prayer for our sweet Brielle.